Predictors of Discrepancy Between Care Recipients With Early-Stage Dementia and Their Caregivers On Perceptions of the Care Recipients' Quality of Life
Methods: This study was based on secondary analysis of cross-sectional data drawn from a study of 200 care dyads of CRs with early-stage dementia and their primary family CGs. Functional impairment was measure by 8 item scale. The 15- item decision-making involvement scale assessed CGs’ and CRs’ thoughts about CRs’ decision-making involvement on daily care. The relationship strain was measured by the 4-item scale. CRs’ report of their depressive symptomatology was measured by the 20-item scale. The 13-item QOL scale assessed CG s’ and CRs’ thoughts about CRs’ QOL. CG-CR Discrepancy regarding CR’s QOL was operationalized in two different ways: an absolute discrepancy measure and a categorical direction of discrepancy measure. Paired t-test, and OLS multiple regression (with the absolute discrepancy as outcome) and binary logistic regression (with the direction of the discrepancy as outcome) were used for analyses.
Results: Findings showed that CGs rated CRs’ QOL significantly lower (worse) than CRs did (Aim1). OLS Regression results showed that greater incongruence in perceptions of CRs’ decision-making involvement and higher level of CR impairment in activities of daily living were significantly related to higher discrepancy between CG and CR about CRs’ QOL (Aim2). Using binary logistic regression, this study found that when the dyad had more DMI incongruence, or CG reported higher relationship strain, CG were more likely to report lower CR’s QOL than CR reported (Aim2).
Implications: Practitioners should consider incorporating CRs’ perspective when planning care instead of solely depending on CGs’ perspective. Also, practitioners should pay attention to any gap between perceptions of CGs and CRs, particularly with regard to CRs’ QOL.