Methods: In this qualitative study, an a priori approach, using the trust-related factors in community-academic research partnerships (TICARP) framework was used to examine strategies implemented by National and California state Alzheimer’s Disease Centers to create and maintain trust with communities. The conceptual framework of trust presented by Dave et al. identifies 5 trust-related factors in community-academic research partnerships: 1) authentic , effective and transparent communication, 2) mutually respectful and reciprocal relationships, 3) sustainability, 4) committed partnerships, 5) communication, credibility and methodology to resolve problems. National and California state Alzheimer’s Disease Center personnel, responsible for community engagement, outreach, and recruitment efforts into ADRD research studies (n=25) were interviewed.
Results: Findings demonstrate personnel endorsed their commitment to partnerships and their ability to communicate credible information and resolve problems related to research participation. There was some indication of some personnel that incorporated principles of mutually respectful and reciprocal relationships with the community. However, levels of support and mutual effort varied. Opportunities for authentic, effective, and transparent communication and implementation of sustainable practices were least endorsed. In addition, to these dimensions, personnel shared the need to address access to healthcare and to assess the community when working with racial and ethnic minorities.
Conclusions: Results indicate that ADRD research personnel endorsed all TICARP dimensions in their recruitment of racial and ethnic minorities into ADRD research studies. Further development of these approaches indicates promising efforts that can be used to expand on creating and maintaining trust. In addition, results demonstrate the need for healthcare access and a community assessment when recruiting racial and ethnic minority populations. Attention to these strategies may support trust and increase participation of African American and Latinos in Alzheimer’s Disease and related dementias research.